Edmonton and area fetal Alcohol Network Society – Ten tips for effective advocacy
FASD Success Show – #058 Nancy Lockwood: Practical Tools and Tips for Caregivers and Advocates
Like a few of the guests I have interviewed for the FASD Success Show, our professional lives have intersected at various points. I first met Nancy Lockwood eight years ago when I was invited to present at the Ottawa FASD Caregiver Group. A lot has changed in the last eight years.
Dawn Davenport (14 March 2019) ‘What is it Really Like to Raise a Child with FASD?’ Interview with Suzanne Emery, a Program Director with FASCETS, a nonprofit focused on helping parents raise children with Fetal Alcohol Spectrum Disorder. She is also the mom of a son with FASD. Creating a Family
Integrated Learning Strategies: Learning Corner Areas of Attention (May 2016). ‘Is My Child Developmentally Ready for Sustained Attention, Focus and Multitasking’
Recovering Hope: FASD (Documentary) Published on 8 Dec 2018: 8 women tell poignant stores about their children w/ FASD (fetal alcohol spectrum disorders) and how they’re learning effective new ways to parent. Also, researchers clinicians explain the physical, mental, behavioral & learning disabilities associated with FASD & discuss evaluation and intervention. Link here…
Patrick Butler (Apr 2018) ‘Kinship carers ‘left poor and homeless by welfare changes’’ The Guardian.
Understood Team. ‘Slow Processing Speed and Anxiety: What You Need to Know.’
James E. Jan, Kwadwo O. Asante, Julianne L. Conry, Diane K. Fast, Martin C. O. Bax, Osman S. Ipsiroglu, Elizabeth Bredberg, Christine A. Loock, and Michael B. Wasdell, (Mar 2010) ‘Sleep Health Issues for Children with FASD: Clinical Considerations’ International Journal of Pediatrics
vol. 2010, Article ID 639048, 7 pages, 2010.
Jodie Kulp (Apr 2018) ‘If you have pogo stick kids? Best sleep strategies.’ Real Mindz
Dr Vanessa Spiller (July 2020) Infographic: Ability Wheel
This visual tool was developed by Australian clinical psychologist Dr Vanessa Spiller. This tool is useful to parents, teachers or service providers to summarise a young person’s abilities across the 10 (plus 1) brain domains to share in a clear way accurate information about a young person and their abilities. Key strategies for supporting and accommodating the young person can be added in. This visual tool can’t replace assessment reports but will be helpful for parents and carers to better understand why their young people do the things they do. There is an accompanying video to show how the Ability Wheel can be completed. A blank copy of the tool can be downloaded from the Explained by Brain page on my website at no charge, as is the video.
A parent writes FASD: What I have learned so far. Our Sacred Breath, 29 Nov 2018.
Australian Indigenous research and resources on the FASD Hub with links to Australian Indigenous Health InfoNet Alcohol and Other Drugs Knowledge Centre
Lakeland Centre for FASD (Fetal Alcohol Spectrum Disorder’s tips on how to get back into the school routine with ease). Read more here.
FASD Forever – Jeff Noble. Website link here.
Duke University, North Carolina (2017) ‘Understanding Fetal Alcohol Spectrum Disorders (FASD): A Comprehensive Guide for Pre-K-8 Educators’ Symposium
Let’s Talk FASD, 2005 by VON CANADA. A useful manual.
New video: Edmonton and area Fetal Alcohol Network Society – “What it takes: Supporting loved ones with FASD.” Link to video here…
Sensory overload Read more here…
Dr Gabor Maté on FASD, ADHD or both. View here.
Northwest Strategies: FASD Misconceptions. Beyond physical effects. Who is at risk? What is FASD? Missing the signs. View here.
CanFASD – Why research matters to parents. View here.
National Parent/Family Support Groups Links
Tasmania Read more here…
rffada National Parent Support Group – parents only. Read more here…
Alice Springs FASD Support Group Resources. Read more here…
rffada Darwin. Read more here…
Queensland FASD Support Group. Read more here…
Queensland – Cairns